Anna Middleton

Head of Society and Ethics Research Group (since 2016)

Connecting Science, Wellcome Genome Campus (inc Sanger Institute), Cambridge, UK
Linked to Health, Medicine and Society Directory, University of Cambridge
Vice-Chair of Association of Genetic Nurses and Counsellors (AGNC)

Areas of expertise:

Exploring the impact of genomics on people
Gathering empirical data using quantitative and qualitative research methods
Genetic counselling research and practice

Specialist interest in:

Attitudes towards DNA and Big Data
Finding new and creative ways to reach the public with genetics (e.g. via film)
Attitudes towards the sharing of incidental findings from whole genome studies
Attitudes towards testing in pregnancy for deafness
Attitudes towards access of genetic counselling services for D/deaf and hard of hearing people
Breast/ovarian cancer clinical work
Counselling supervision; policy for registration of genetic counsellors

Click on image for The National, UAE newspaper article

Current Projects

Global Alliance for Genomics and Health Survey Click Here

Socialising the Genome

Click Here

Genetic/Genomic Counselling

Social Science: Latest publications

Film that accompanies a paper we published in European Journal Human Genetics on attitudes towards returning incidental findings from research

Presenting in Kyoto at the International Congress of Human Genetics on incidental findings reseach from DDD study.

Thoughts on 'What is Genomic Counselling': film that accompanies a paper we published on this topic in Molecular Genetics and Genomic Medicine

AGNC Vision for Genetic Counsellors within Genomic Medicine

Thoughts on 'What is Genomic Counselling': film that accompanies a paper we published on this topic in Molecular Genetics and Genomic Medicine

Ethics

I feel very privileged to have been the subject matter expert with colleagues for Health Education England's teaching of NHS staff to 'take consent for 100kGP'