Head of Society and Ethics Research Group (since 2016)
Areas of expertise:
  • Exploring the impact of genomics on people

  • Gathering empirical data using quantitative and qualitative research methods

  • Genetic counselling research and practice

 

Specialist interest in:
  • Attitudes towards DNA and Big Data

  • Finding new and creative ways to reach the public with genetics (e.g. via film)

  • Attitudes towards the sharing of incidental findings from whole genome studies

  • Attitudes towards testing in pregnancy for deafness

  • ​Attitudes towards access of genetic counselling services for D/deaf and hard of hearing people

  • ​Breast/ovarian cancer clinical work

  • ​Counselling supervision; policy for registration of genetic counsellors

Click on image for The National, UAE newspaper article

Current Projects

Global Alliance for Genomics and Health Survey Click Here

Socialising the Genome

Click Here

Genetic/Genomic Counselling

Social Science: Latest publications

Film that accompanies a paper we published in European Journal Human Genetics on attitudes towards returning incidental findings from research

Presenting in Kyoto at the International Congress of Human Genetics on incidental findings reseach from DDD study.

Thoughts on 'What is Genomic Counselling': film that accompanies a paper we published on this topic in Molecular Genetics and Genomic Medicine

AGNC Vision for Genetic Counsellors within Genomic Medicine

Thoughts on 'What is Genomic Counselling': film that accompanies a paper we published on this topic in Molecular Genetics and Genomic Medicine

Ethics

I feel very privileged to have been the subject matter expert with colleagues for Health Education England's teaching of NHS staff to 'take consent for 100kGP'

Teaching

Wellcome Courses

The first HEE and WT sponsored course for GCs on genomics. Next ones Jan 2016, Feb 2017

Channel 4 news

piece about the GenomEthics study that I designed and manage within the DDD project

Media about our Social Science Research

Anna Middleton